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joeybug
09-29-2010, 12:31 AM
Hi,
I've made a group for those of us who are disabled, mostly to see if there is anyone else on the UU forums who is and also so that we can give each other advice on disabled friendly groups and festivals and such...if you are disabled and want to join the link is:

http://www.ukuleleunderground.com/forum/group.php?groupid=141

Thanks
Joey

mm stan
09-29-2010, 12:42 AM
Aloha Joeybug,
How cool you're taking the initiative to do so...my hats off to you...
BTW- I hope you're feeling better and hope the new strings makes your ukulele sing and
bring much happiness in your life....Take Care and God Bless!! Have fun and enjoy!!!!
"Keep strumming them strings" MM Stan...

Hippie Dribble
09-29-2010, 12:53 AM
hi Joey

what a great idea, and all power to you. Mutual support and friendship...it reminds me of that great old saying: "A problem shared is a problem halved"

I'm sure there will be members here to join in this group with you...

I'm not sure I qualify: I have lived with insulin dependent diabetes nearly 25 years, and, while not "disabled", as each year goes on, life does seem to get tougher.

I hope some great things come from the group.

Many blessings to you, eugene. :)

joeybug
09-29-2010, 01:08 AM
hi Joey

what a great idea, and all power to you. Mutual support and friendship...it reminds me of that great old saying: "A problem shared is a problem halved"

I'm sure there will be members here to join in this group with you...

I'm not sure I qualify: I have lived with insulin dependent diabetes nearly 25 years, and, while not "disabled", as each year goes on, life does seem to get tougher.

I hope some great things come from the group.

Many blessings to you, eugene. :)

I have a rare from of asthma that makes me need to use a wheelchair so looking at me when I stand up, I'm not disabled, but I do use a wheelchair 95% of the time...I'm 28 and know the feeling that as each year goes on, life gets tougher...trust me, I totally get that...maybe you should join, as you do have what I would call "an invisible illness" and even possibly (hopefully without causing offence) an "invisible disability"...

joeybug
09-29-2010, 01:09 AM
Aloha Joeybug,
How cool you're taking the initiative to do so...my hats off to you...
BTW- I hope you're feeling better and hope the new strings makes your ukulele sing and
bring much happiness in your life....Take Care and God Bless!! Have fun and enjoy!!!!
"Keep strumming them strings" MM Stan...

I'm not on the strong morphine today so that's a plus, tis always a plus to be able to play the Ukulele without being foggy headed!

mm stan
09-29-2010, 01:16 AM
I'm not on the strong morphine today so that's a plus, tis always a plus to be able to play the Ukulele without being foggy headed!

I know how it is suffering and with medications....it's hard to focus but it is a good diversion from our health issues....been in pain over 19 years.....MM Stan..
and definetly every year gets harder...when I was younger my asthma was really bad and was sleeping with a vaporizer in those days. In my early twenties I
moved to the East coast but with my asthma I couldn't hanndle the pollution and I was always shortness of breath...it still bothers me now, but slighty
with a tight chest and shallow breathing...my asthma seems a little better, but they say you can never get rid of it fully....living with health issues...Stan..

Hippie Dribble
09-29-2010, 01:44 AM
I have a rare from of asthma that makes me need to use a wheelchair so looking at me when I stand up, I'm not disabled, but I do use a wheelchair 95% of the time...I'm 28 and know the feeling that as each year goes on, life gets tougher...trust me, I totally get that...maybe you should join, as you do have what I would call "an invisible illness" and even possibly (hopefully without causing offence) an "invisible disability"...

I wanted to volunteer to join and nearly wrote that in my first post, but decided I shouldn't, for fear of being insensitive or causing you offence (how do we classify the "disabled" these days anyway?)...

but yeah, I'd love to join and if you're cool with that, I'll do so now. Thanks Joey.

joeybug
09-29-2010, 01:44 AM
I know how it is suffering and with medications....it's hard to focus but it is a good diversion from our health issues....been in pain over 19 years.....MM Stan..
and definetly every year gets harder...when I was younger my asthma was really bad and was sleeping with a vaporizer in those days. In my early twenties I
moved to the East coast but with my asthma I couldn't hanndle the pollution and I was always shortness of breath...it still bothers me now, but slighty
with a tight chest and shallow breathing...my asthma seems a little better, but they say you can never get rid of it fully....living with health issues...Stan..

It certainly is a good distraction, I love that even when I'm on oxygen, in pain and feeling dreadful physically, I can still pick up my Uke and have a good ole strum and play!

Today is a good day, may there be more of those round the corner!

joeybug
09-29-2010, 01:46 AM
I wanted to volunteer to join and nearly wrote that in my first post, but decided I shouldn't, for fear of being insensitive or causing you offence (how do we classify the "disabled" these days anyway?)...

but yeah, I'd love to join and if you're cool with that, I'll do so now. Thanks Joey.

I call myself "disabled", not sure what others prefer, but that's fine by me :D

And don't worry, I'm very hard to offend :D

fitncrafty
09-29-2010, 01:50 AM
In someways the 'invisible' disability is harder, when one can't 'see' what is there assumptions are made.... I think this group is a great thing, Joey I am sure that as it grows many will benefit!

joeybug
09-29-2010, 01:59 AM
In someways the 'invisible' disability is harder, when one can't 'see' what is there assumptions are made.... I think this group is a great thing, Joey I am sure that as it grows many will benefit!

Totally agree with that. All three of my conditions are "invisible" if I didn't use a wheelchair (or sometimes a crutch) you really wouldn't know I *was* disabled and that has led to assumptions..

Thanks for the positiveness :D

mm stan
09-29-2010, 02:14 AM
I call myself "disabled", not sure what others prefer, but that's fine by me :D

And don't worry, I'm very hard to offend :D

Is physically challenged the proper term...is it politically correct??? HMM what do you all think....

joeybug
09-29-2010, 02:18 AM
Is physically challenged the proper term...is it politically correct??? HMM what do you all think....

I've heard it used, but I myself prefer the term "disabled". Next thing they'll be referring to asthma as "breathing challenged"!! :D

mm stan
09-29-2010, 02:24 AM
I've heard it used, but I myself prefer the term "disabled". Next thing they'll be referring to asthma as "breathing challenged"!! :D

Yeah, I guess it gives it a negative connotation...
I think Carrie makes a good point on invisable disabilities...it is darn right cruel to make assumptions based on sight only...

joeybug
09-29-2010, 02:38 AM
Yeah, I guess it gives it a negative connotation...
I think Carrie makes a good point on invisable disabilities...it is darn right cruel to make assumptions based on sight only...

Yeah, some of the looks I get for parking in a disabled space! Still, I have a T-shirt that my friend made which says "This is what a person with an invisible disability looks like!" that usually stops the looks :D

mm stan
09-29-2010, 02:54 AM
Yeah, some of the looks I get for parking in a disabled space! Still, I have a T-shirt that my friend made which says "This is what a person with an invisible disability looks like!" that usually stops the looks :D

When in the past I was still driving, I was parked in a disability stall at a shopping center and this middle aged guy in this shiny new car kept honking his horn for me to move, I showed him
my disability placard out of my window...the disability stall was closest to the store doors.....after I noticed that guy parked all the way in the back stall where no one else was parking( I assume
he didn't want to get door nicks) because they were plenty of parking real closer(about 150 ft)...and I watched him get out of his car and looked and walked fine to me..but then again who knows...I
just wonder if people sometimes misabuse the system......I don't want to be hypocrite...just saying...

brucemoffatt
09-29-2010, 02:55 AM
All power to you joeybug, the group is a great idea. I know from a hospital experience what you mean about the morphine fog.

Keep strummin and hummin.

Bruce in Adelaide.

joeybug
09-29-2010, 03:14 AM
When in the past I was still driving, I was parked in a disability stall at a shopping center and this middle aged guy in this shiny new car kept honking his horn for me to move, I showed him
my disability placard out of my window...the disability stall was closest to the store doors.....after I noticed that guy parked all the way in the back stall where no one else was parking( I assume
he didn't want to get door nicks) because they were plenty of parking real closer(about 150 ft)...and I watched him get out of his car and looked and walked fine to me..but then again who knows...I
just wonder if people sometimes misabuse the system......I don't want to be hypocrite...just saying...

Yeah, I see parents with small children parking in the disables places without a badge and I assume that they're not disabled, but I don't really know, people do abuse the system, but I guess it's not down to us to decide who gets to use them and who doesn't...

joeybug
09-29-2010, 03:15 AM
All power to you joeybug, the group is a great idea. I know from a hospital experience what you mean about the morphine fog.

Keep strummin and hummin.

Bruce in Adelaide.

Thanks for the comment, I've just had to take some more morphine since the pain was creeping back up and so the fog will come, but as long as I can keep playing, I'm happy :D

Hippie Dribble
09-29-2010, 03:22 AM
Yeah, I guess it gives it a negative connotation...
I think Carrie makes a good point on invisable disabilities...it is darn right cruel to make assumptions based on sight only...

Hey Stan, good to see you joined in on this thread mate...I know people are always shocked when they find out I am a diabetic...I remember as a youngster I was terribly paranoid about the condition, would go and hide places to take the insulin...people'd always say..."Why you carrying a handbag around all the time", " you must really like jellybeans" etc etc...but in truth, looking back I just don't think I ever really accepted it as a teenager and tried to live in denial...of course, as one ages and complications begin to appear, it's harder to wear a mask. I have these past couple of years begun to live in acceptance of it...not before time I might add, but having many probs these days...

Just on the question you asked Stan about "what is the proper term to call 'it'"...man, I just say call it what it is - a disability. Political correctness is an abomination in my view...too often ends up sounding at best, disingenuous, and, at worst, utterly condescending

I agree that we must be careful in the way we jump to conclusions about people and their motivations. We're all in this thing called life together, no, and we need to reach out to each other more, rather take the easy option of criticising all the time...Hey, anyone can be a critic...it doesn't take too much intelligence...what is much more difficult and a true test of character is how we treat the lowest, poorest, most unlikeable people

Sorry about the philosophising...that's the ol' charlie brown streak coming out in me...Good Grief!!! :o

joeybug
09-29-2010, 03:35 AM
Hey Stan, good to see you joined in on this thread mate...I know people are always shocked when they find out I am a diabetic...I remember as a youngster I was terribly paranoid about the condition, would go and hide places to take the insulin...people'd always say..."Why you carrying a handbag around all the time", " you must really like jellybeans" etc etc...but in truth, looking back I just don't think I ever really accepted it as a teenager and tried to live in denial...of course, as one ages and complications begin to appear, it's harder to wear a mask. I have these past couple of years begun to live in acceptance of it...not before time I might add, but having many probs these days...

Just on the question you asked Stan about "what is the proper term to call 'it'"...man, I just say call it what it is - a disability. Political correctness is an abomination in my view...too often ends up sounding at best, disingenuous, and, at worst, utterly condescending

I agree that we must be careful in the way we jump to conclusions about people and their motivations. We're all in this thing called life together, no, and we need to reach out to each other more, rather take the easy option of criticising all the time...Hey, anyone can be a critic...it doesn't take too much intelligence...what is much more difficult and a true test of character is how we treat the lowest, poorest, most unlikeable people

Sorry about the philosophising...that's the ol' charlie brown streak coming out in me...Good Grief!!! :o

:agree: on all of this!

mm stan
09-29-2010, 04:13 AM
I agree Eugene, when people ask me about my disability, sometimes I feel they are disingenuous and absoultely darnright condensending...
I feel that they are being judgemental and mean spirited, in some things that they know little or nothing about. I truely believe in Karma...
and so I try to surround myself around positive things and people, that's why I am glad to be here....Thank you all....MM Stan...
Today I saw the nicest act of kindness ever from this young girl, I was waiting for my Handi van and saw this older gentleman confused
and lost and could barely walk....he moved really slowly and this young girl took his arm and assisted him around two sides of a block to get
to his doctors office....it must have taken them at least close to an hour to get there....she was so patient and understanding, I guess
I just wanted to share this good story with all of you....

joeybug
09-29-2010, 04:24 AM
I agree Eugene, when people ask me about my disability, sometimes I feel they are disingenuous and absoultely darnright condensending...
I feel that they are being judgemental and mean spirited, in some things that they know little or nothing about. I truely believe in Karma...
and so I try to surround myself around positive things and people, that's why I am glad to be here....Thank you all....MM Stan...

I hate when people are condensending, it's like yes, my lungs don't work right and I can't walk that far without pain, but hello! Still got a brain and I use it! No need to talk down to me!!

Glad to have you here Stan, you've really helped me see the spirit of Aloha since I joined :D

Hippie Dribble
09-29-2010, 04:27 AM
I agree Eugene, when people ask me about my disability, sometimes I feel they are disingenuous and absoultely darnright condensending...
I feel that they are being judgemental and mean spirited, in some things that they know little or nothing about. I truely believe in Karma...
and so I try to surround myself around positive things and people, that's why I am glad to be here....Thank you all....MM Stan...

I empathise with all that you said there Stan...I agree too that it is a great thing to try and be around positive people and also to work as a positive influence /friend in others'lives, but for me, I wouldn't say I necessarily believed in Karma...I was into Buddhism for many years but since abandoned it when I became a Christian over 12 years back now...what I do believe in though is something very much akin to the karmic principle in that I believe we should all try and do good for others and that we will, each of us, be judged on the basis of what we have (or have not) done for each other. And mate, all I can say is one big "amen"!!!! to your last remark....many, manylovely people at the UU and you're one of them brus'. cheers

joeybug
09-29-2010, 04:35 AM
I empathise with all that you said there Stan...I agree too that it is a great thing to try and be around positive people and also to work as a positive influence /friend in others'lives, but for me, I wouldn't say I necessarily believed in Karma...I was into Buddhism for many years but since abandoned it when I became a Christian over 12 years back now...what I do believe in though is something very much akin to the karmic principle in that I believe we should all try and do good for others and that we will, each of us, be judged on the basis of what we have (or have not) done for each other. And mate, all I can say is one big "amen"!!!! to your last remark....many, manylovely people at the UU and you're one of them brus'. cheers

Your way of thinking is very similar to my own eugene, I've only been on the forum for about 10 days? But I've seen so much of the Aloha spirit and such love and friendliness from everyone even when I'm asking a really dumb question that should be obvious! It's nice to be surronded by so many lovely people!

I'm back on the morphine, so if this is babbling then please excuse me, I'm fighting chest pain right now so I'm sucking on my oxygen and in a morphine haze!

Hippie Dribble
09-29-2010, 04:49 AM
Your way of thinking is very similar to my own eugene, I've only been on the forum for about 10 days? But I've seen so much of the Aloha spirit and such love and friendliness from everyone even when I'm asking a really dumb question that should be obvious! It's nice to be surronded by so many lovely people!

I'm back on the morphine, so if this is babbling then please excuse me, I'm fighting chest pain right now so I'm sucking on my oxygen and in a morphine haze!

There are no dumb questions Joey...what's dumb is not asking questions!!!

And I agree with you Joey, I have found this place to be full of great people and a testimony to the the humble uke - it has just confirmed what I had found from personal experiences...that the ukulele brings people together. We (my wife & kids) are a little isolated down here in the Tassie bush, but UU is the closest I'm gonna get to being part of a community

and no, you're not babbling. This has been a good chat tonight re all these issues and it's been nice to get to know you a little better. I'm a bit of a master of the art of babbling myself......

Take care...see you on the trail...(Its nearly 1am Thurs morning here now so its bed or bust)

But again, hope the group is a success and that much good comes from it.Blessings mate...

joeybug
09-29-2010, 04:53 AM
There are no dumb questions Joey...what's dumb is not asking questions!!!

And I agree with you Joey, I have found this place to be full of great people and a testimony to the the humble uke - it has just confirmed what I had found from personal experiences...that the ukulele brings people together. We (my wife & kids) are a little isolated down here in the Tassie bush, but UU is the closest I'm gonna get to being part of a community

and no, you're not babbling. This has been a good chat tonight re all these issues and it's been nice to get to know you a little better. I'm a bit of a master of the art of babbling myself......

Take care...see you on the trail...(Its nearly 1am Thurs morning here now so its bed or bust)

But again, hope the group is a success and that much good comes from it.Blessings mate...

Sleep well! And I'll see you around! I've put up some photos and an introduction post on the group if you want to read those :D

Blessings to you!

mm stan
09-29-2010, 05:11 AM
I hate when people are condensending, it's like yes, my lungs don't work right and I can't walk that far without pain, but hello! Still got a brain and I use it! No need to talk down to me!!

Glad to have you here Stan, you've really helped me see the spirit of Aloha since I joined :D

Aloha Joeybug,
Thanks for the nice words, and I see you have the much of "Aloha" spirit in you too...
as I see you have helped others too...that's what it's all about...passing it around!!!
and sharing, kinda like the UU forum here...I'm glad we has a chance to talk too!!
Isn't Eugene an awesome guy!! He is what Aloha is all about too!! As he shares his
friendship and knowledge from the heart. Glad to call him a friend of mine...
As for you, I hope feeling better with you meds and O2...and I consider you a friend of
mine too!Take Care and God Bless! MM Stan...
BTW- Best wishes on your group and Good Luck!!!

joeybug
09-29-2010, 05:18 AM
Aloha Joeybug,
Thanks for the nice words, and I see you have the much of "Aloha" spirit in you too...
as I see you have helped others too...that's what it's all about...passing it around!!!
and sharing, kinda like the UU forum here...I'm glad we has a chance to talk too!!
Isn't Eugene an awesome guy!! He is what Aloha is all about too!! As he shares his
friendship and knowledge from the heart. Glad to call him a friend of mine...
As for you, I hope feeling better with you meds and O2...and I consider you a friend of
mine too!Take Care and God Bless! MM Stan...
BTW- Best wishes on your group and Good Luck!!!

Thanks Stan, it's been nice talking with you and very nice to be considered a friend :D

I'm off the O2 now thankfully, beginning to feel better so I'm gonna get back to practising for that competition!

Thanks for talking with me and thanks for your kind words!

Take care!

TicToc
09-29-2010, 10:47 AM
In second grade I was actually diagnosed with a mild form of Tourette's Syndrome. I'm sure nowadays most of you know what it is, but let me set some things straight just in case. First of all, I do not use profanity against my will. That is actually an extremely rare form of TS called (hope I spell this right) Coroporlallia. The tics that I do have are small and not usually noticeable, resulting in people not knowing I have it, and usually not believing me when I say it, due in large part to the media in the last 5 years or so. I'd love to join this group, but do I qualify?

Miss Michele
09-29-2010, 10:58 AM
What a great idea! Good luck with it!

Oh, I also saw your video, but I don't think I commented (sorry). Awesome job! My first song is a childrens song but I don't have the guts to post a video right now lol

Hippie Dribble
09-29-2010, 01:47 PM
In second grade I was actually diagnosed with a mild form of Tourette's Syndrome. I'm sure nowadays most of you know what it is, but let me set some things straight just in case. First of all, I do not use profanity against my will. That is actually an extremely rare form of TS called (hope I spell this right) Coroporlallia. The tics that I do have are small and not usually noticeable, resulting in people not knowing I have it, and usually not believing me when I say it, due in large part to the media in the last 5 years or so. I'd love to join this group, but do I qualify?

hey TicToc

good on you brother...I think from what Joey was saying earlier in the thread that she would like anyone to join who either has a disability, a "hidden" or "invisible" disability that most are unaware of, or just has a heart for people who suffer from one...I think that, in that context, you do qualify.

Incidentally, re tourette's, I have on DVD a copy of a really interesting documentary about a young guy trying to come to terms with his condition called "John's Not Mad"....great film, and demystifies much about tourette's. He does suffer from the rarer form you describe.
If you want me to send you a copy I'd be pleased to send you one in the mail...just PM me TicToc & let me know a postal address...

Cheers mate, eugene.

joeybug
09-29-2010, 10:25 PM
In second grade I was actually diagnosed with a mild form of Tourette's Syndrome. I'm sure nowadays most of you know what it is, but let me set some things straight just in case. First of all, I do not use profanity against my will. That is actually an extremely rare form of TS called (hope I spell this right) Coroporlallia. The tics that I do have are small and not usually noticeable, resulting in people not knowing I have it, and usually not believing me when I say it, due in large part to the media in the last 5 years or so. I'd love to join this group, but do I qualify?

Yes, I would call that a disability, feel free to join :D

joeybug
09-29-2010, 10:39 PM
What a great idea! Good luck with it!

Oh, I also saw your video, but I don't think I commented (sorry). Awesome job! My first song is a childrens song but I don't have the guts to post a video right now lol

Thanks, I'm trying to perfect another song for a competition and I'm getting there, it's fun! I love the Ukulele, it's just so easy to play and spreads love all around...my God daughter Miss D wants one and she doesn't know but she's getting a blue on for her sixth birthday! Then I get to teach her how to play!

joeybug
09-29-2010, 10:40 PM
hey TicToc

good on you brother...I think from what Joey was saying earlier in the thread that she would like anyone to join who either has a disability, a "hidden" or "invisible" disability that most are unaware of, or just has a heart for people who suffer from one...I think that, in that context, you do qualify.

That is right, doesn't matter if people can "see" your disability or not, you can join anyway :D

How are you today eugene?

Ahnko Honu
09-29-2010, 11:34 PM
I suffer from chronic UA Syndrome, I also have dain bramage from falling out of too many coconut trees as a child. ;)
Seriously though, what a great idea you have! I have a son with Asperger's Syndrome, IQ that goes thru the roof but difficulty in normal social settings interacting with others especially strangers.

joeybug
09-29-2010, 11:55 PM
I suffer from chronic UA Syndrome, I also have dain bramage from falling out of too many coconut trees as a child. ;)
Seriously though, what a great idea you have! I have a son with Asperger's Syndrome, IQ that goes thru the roof but difficulty in normal social settings interacting with others especially strangers.

I have friends with Asperger's and I know how hard they find interaction in normal social settings...how old is your son? Ukulele player? or is he too young to start *just* yet?

Ahnko Honu
09-30-2010, 12:05 AM
He just made 21. He graduated from his High School Summa Cum Laude but since graduation has had a difficult time adjusting to his new home (moved to another island), trying to make new friends, and finding employment. He has no interest in music, just in reptiles, insects, and Pokemon. He's a great kid, wish I knew how to help him better.

joeybug
09-30-2010, 12:12 AM
He just made 21. He graduated from his High School Summa Cum Laude but since graduation has had a difficult time adjusting to his new home (moved to another island), trying to make new friends, and finding employment. He has no interest in music, just in reptiles, insects, and Pokemon. He's a great kid, wish I knew how to help him better.

He sounds like a great kid and I'm sure that in time, he'll adjust, I know from my friend that she does adjust to new situations it just takes her a while to feel overly comfortable there, but once she gets over that hurdle she's okay...good luck to him!

Hippie Dribble
09-30-2010, 12:44 AM
That is right, doesn't matter if people can "see" your disability or not, you can join anyway :D

How are you today eugene?

hi Joey...really good thanks mate...It was after 1am last night when I finally dragged myself away from the computer, but, I must say I enjoyed the discussion on this thread last night. Hope you are well yourself...

Hippie Dribble
09-30-2010, 12:50 AM
I suffer from chronic UA Syndrome, I also have dain bramage from falling out of too many coconut trees as a child. ;)
Seriously though, what a great idea you have! I have a son with Asperger's Syndrome, IQ that goes thru the roof but difficulty in normal social settings interacting with others especially strangers.

hi Ahnko

in that context, then everyone on this website is an eligible member of this new group!!!! :o

I used to work as a school chaplain and did some 1:1 work with a great young guy who had Aspergers. Socially, he had foot in mouth disease, but he was quite popular and extremely gifted in many ways. As I look back on that 18months I know it was me who learnt more and gained more from that relationship than he.

joeybug
09-30-2010, 01:07 AM
hi Joey...really good thanks mate...It was after 1am last night when I finally dragged myself away from the computer, but, I must say I enjoyed the discussion on this thread last night. Hope you are well yourself...

I'm okay, about to take some pain meds, but didn't have to get up early this morning because Miss D is off school because she's got a cold/sore throat thing, she'll probably go back tomorrow!

The discussion was really good :D

There's an intro post on the group page, if you want to post there that would be great :D

I also had a nice surprise this morning, not sure if I'm allowed to say anything, but basically I can see why everyone loves these boards so much, the Aloha spirit is really there!